Down Syndrome: Visions for the 21st Century by William I. Cohen, Lynn Nadel, Myra E. Madnick

By William I. Cohen, Lynn Nadel, Myra E. Madnick

Supplying a entire survey of the medical, academic, developmental, psychosocial, and transitional concerns appropriate to individuals with Down syndrome, this e-book addresses the wishes of relatives, caregivers, and pros alike. Edited in organization with the nationwide Down Syndrome Society, this updated therapy contains the most recent advancements touching on sexuality, inclusion, transition into maturity, and laws, in addition to a dialogue of the Human Genome venture and the sequencing of chromosome 21.

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H UMAN R ESOURCES Under the proposed framework, persons with disabilities will receive consumer-directed services that meet their unique needs and preferences as specified in an individual service or personal support plan. The person or entity that delivers the services will not be limited to existing human service providers or traditional agencies. The person who will receive the services will select and direct the agent. Thus a friend, family member, employer, selfemployed independent contractor, group, or organization may provide the consumer-chosen services.

To conflicts that assume incapacity and continued, almost total, dependence. Conflicts of interest pervade the entire system from individual planning to state contracting provisions. Almost all of these revolve around the issue of ownership and traditional provider attitudes concerning their historical relationships with funding authorities. Individuals with disabilities become commodities in this arrangement. It is not unusual for the current system to place more emphasis on typical provider arrangements than on real freedom and choice for individuals with disabilities.

Brookes Publishing. (1998); Brooke, V; Inge, K; Armstrong, A; Wehman, P. Supported Employment Handbook: A Customer-Driven Approach for Persons with Significant Disabilities. Richmond: VCU (1997). ,Callahan, M; Garner, B. “Keys to the Workplace” (1999); Callahan, M. Final Report: UCPA’s Choice Access Project (1999); Cooper, A. Final Report: PEP Project (1999). 20 Wehman, P; Kregel, J. ” Journal of the Association for Persons with Severe Handicaps 20(4) 286–299 (1995). 2. 22 The consumer determines who is invited to be involved in the planning process.

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